The General Chat Thread (2016-2022)

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I am not going to accompany my husband tomorrow to the third festival day, unfortunately.

Today was a planned rest day for me, but I have to say I have never had this kind of pain before and I am used to something. It's like my arms are on fire, oxycodone is barely cutting it and I have been off opiate meds for a long time.
So in order not to immobilise myself, I won't be able to go.

We're still in the process of finding out why I am in constant pain, I hope the rheumatologist on thursday can answer it because this is getting very serious.
 
Windigo said:
I am not going to accompany my husband tomorrow to the third festival day, unfortunately.

Today was a planned rest day for me, but I have to say I have never had this kind of pain before and I am used to something. It's like my arms are on fire, oxycodone is barely cutting it and I have been off opiate meds for a long time.
So in order not to immobilise myself, I won't be able to go.

We're still in the process of finding out why I am in constant pain, I hope the rheumatologist on thursday can answer it because this is getting very serious.
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That is terrible, I am so sorry to hear this! I know you had planned on not going all 3 days and apparently you must have had some foresight about it. I hope you are feeling better soon :hug:
 
JAS_OH1 said:
That is terrible, I am so sorry to hear this! I know you had planned on not going all 3 days and apparently you must have had some foresight about it. I hope you are feeling better soon :hug:
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Well I have barely been able to walk since february now, the doctor's are just doing stuff at a snails pace so I am getting worse. So I was prepared for dissapointment and I am OK with that. I just wasn't prepared for this amount of pain, so I really hope I am soon getting some answers.
 
Windigo said:
We're still in the process of finding out why I am in constant pain, I hope the rheumatologist on thursday can answer it because this is getting very serious.
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That’s terrible. I know you were so looking forward to that second day.

Please keep us updated on your Thursday appointment results. Hoping for some kind of good news.
 
TastyReuben said:
That’s terrible. I know you were so looking forward to that second day.

Please keep us updated on your Thursday appointment results. Hoping for some kind of good news.
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Thanks, I hope it will at least be something obvious this time. A bit done with being an exceptional case.
 
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Windigo so sorry to read you’re on that dreaded path. My partner on that path, we spent years seeing doctors and having all hours of the night hospital visits. He was eventually diagnosed with fibromyalgia and that immediately stopped the 3am anxiety attacks even though nothing cures fybro it’s manageable if you’re not freaking out for years on end because they can’t tell you why you’re in pain all the time. A doctor didn’t solve it. A randomly met stranger did and referred us to a GP who had an interest in it that made the diagnosis pretty quickly. 7 years. I hope you get answers faster than we did.


Yorky. What happens? Festivals? Feasts?
 
Frizz1974 said:
Yorky. What happens? Festivals? Feasts?
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I wouldn't know really. Although I've spent time working in Singapore, I don't think that I've been there during Independence Day.

I've been in Malaysia during their Independence day (August 31st). In '97 I was at a large party most of the day but sadly it was the day that we heard of Princess Diana's demise so it didn't end up a happy day.
 
Frizz1974 said:
Windigo so sorry to read you’re on that dreaded path. My partner on that path, we spent years seeing doctors and having all hours of the night hospital visits. He was eventually diagnosed with fibromyalgia and that immediately stopped the 3am anxiety attacks even though nothing cures fybro it’s manageable if you’re not freaking out for years on end because they can’t tell you why you’re in pain all the time. A doctor didn’t solve it. A randomly met stranger did and referred us to a GP who had an interest in it that made the diagnosis pretty quickly. 7 years. I hope you get answers faster than we did.
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Well I am used to dealing with pain, so I don't have any panic attacks and function OK on a surface level. I've been ill for 7 years already, so I've learned to roll with the punches. So unlike your partner I am not freaking out. But it must have been awful for your partner to not know what was going on! I was told I had IBS for 10 years until it turned out to be Ulcerative Colitis, so I can imagine how desperate your partner would have been.

The rheumatologist is leaning to either auto immune hepatitis , a non contagious form of hepatitis that often comes with Ulcerative Colitis (which I already have). It just means your own body attacks your liver, which causes a lot of symptoms that overlap with reuma. It's a rare condition, and difficult to treat because it's not caused by diet or alcohol as other forms are.
The other option is indeed, fibromalgia. I will hear the verdict on thursday.

As for now, I am feeling a lot better than I did in the weekend and have been able to be a little active again. The pain level varies every day.
 
Windigo said:
Well I am used to dealing with pain, so I don't have any panic attacks and function OK on a surface level. I've been ill for 7 years already, so I've learned to roll with the punches. So unlike your partner I am not freaking out. But it must have been awful for your partner to not know what was going on! I was told I had IBS for 10 years until it turned out to be Ulcerative Colitis, so I can imagine how desperate your partner would have been.

The rheumatologist is leaning to either auto immune hepatitis , a non contagious form of hepatitis that often comes with Ulcerative Colitis (which I already have). It just means your own body attacks your liver, which causes a lot of symptoms that overlap with reuma. It's a rare condition, and difficult to treat because it's not caused by diet or alcohol as other forms are.
The other option is indeed, fibromalgia. I will hear the verdict on thursday.

As for now, I am feeling a lot better than I did in the weekend and have been able to be a little active again. The pain level varies every day.
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Fybro can have some weird symptoms. One time the entire left side of his torso blew up and turned red. Lasted a couple of hours & went away. Never happened again.

He had anxiety already so the not knowing and the constant misdiagnosed stuff that they just threw meds at (cholesterol (wtf?) ulcers, high blood pressure) and tests of all sorts when we couldn’t afford them or the travel from our rural location all snowballed into those antic attacks.

18 years on he is pretty stoic about the constant but ever changing pain levels.

Everything crossed that it’s treatable and relief is coming your way.
 
Frizz1974 said:
Fybro can have some weird symptoms. One time the entire left side of his torso blew up and turned red. Lasted a couple of hours & went away. Never happened again.
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Well, that's something that would cause worry indeed! Sounds pretty alarming.
Frizz1974 said:
He had anxiety already so the not knowing and the constant misdiagnosed stuff that they just threw meds at (cholesterol (wtf?) ulcers, high blood pressure) and tests of all sorts when we couldn’t afford them or the travel from our rural location all snowballed into those antic attacks.
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I totally get it, I didn't intend to come off as judgemental, am sorry if I did. It's just that I am not anxious right now, that's all I meant to say. I'm just frustrated by my limited mobility since the past months. I hate being partially dependent.
Frizz1974 said:
18 years on he is pretty stoic about the constant but ever changing pain levels.
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Yeah you learn to deal with it, but it's still difficult. Much respect for him!
Frizz1974 said:
Everything crossed that it’s treatable and relief is coming your way.
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Thanks for sharing this with me, I hope so too! :hug:
 
It is 3:50 PM here, and the temperature is... no, that can't be right. It says 77F/25C. And what's up with this water that fell from the sky an hour ago?

It did top out at 94F/34C earlier today. But right now, it is quite pleasant. The rain was also nice to see, but it didn't last long enough to do much good.

CD
 
Windigo. I didn’t take it that way. All good.

caseydog we have too much rain. I’d happily send you some of it.


The La Niña wet is supposed to end this month but now we are being told there’s another weather system that’s going to give us a wet spring. The roads are falling apart all over the east coast. Just dreadful. Some families have lost their home altogether after 3 x floods. Terrible.
 
I'm going to have another attempt a burning my log pile and stump later today. I failed 2 days ago, the wood despite being upright was just too wet. We're due more rain tomorrow evening so it's not far off being add dry add it can be... I knew I'd failed when I spotted birds (fairy wrens) flying in and out of the supposedly burning log pile! Great way to rub it in!

I'd even dowsed the whole thing with fuel. All that happened was I burnt 5L of fuel. I can do that anytime I want driving my big old 4×4 lol.

I'm expecting another failure but I'll keep trying... I need to get this pile burnt when the wind blows on 1 particular direction, otherwise the house will disappear into smoke (as in literally be enveloped in smoke not go up in flames) and today and tomorrow are the last 2 days with that wind direction then we get more rain.... don't need it or a wet spring...
 
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