mjd
Veteran
Same here with the anaphylaxis. But living rurally with medical help over an hour away even by helicopter, I have to be exceptionally careful. Dairy finds it's way into so much off everyday life unnecessarily. Only last month hubby came home with a tube of fresh dill because he hadn't been able to find any fresh leaves on the shelves. He didn't think to check the ingredients label because why on earth would chopped dill contain dairy? Yeah, well it did.
Like you, everything has to be checked every time. If so much as a wrapper/packaging redesign occurs, we have to re-check the ingredients. re-checkIng it only says vegetarian on the label and there are no clear non-vegan ingredients alarm bells ring.
Even the simplest of things like a jam sandwich needs the bread, the marg and the jam checking for dairy and not just in the obvious forms that clearly are dairy. Salt and vinegar crisps (or Pringles) are one we routinely find dairy in, yet smokey BBQ flavour is marked as vegan...
And like you, 1 bite is all I need to know I'm in trouble. I carry 2 epi-pens and have a 3rd in the fridge at home (for those thinking why, you actually need 6 doses of an epi-pen to treat anaphylaxis. A single dose is there to but time for paramedics to arrive and administer what's needed. They typically only but you roughly 10 minutes extra time and i live an hour from the nearest help.
The last time I went into anaphylactic shock I was actually in hospital and a doctor had prescribed a new medication for me. I'd enquired about the tablet filler to be told that there was no version of the tablet without the filler in question in it. (This was later established by the hospital pharmacist to be incorrect, it was just that they could not obtain it, however she was able to write me a script for my husband to get filled elsewhere with a version of the medication that didn't contain the filler I was allergic to). The tablet concerned was roughly 4mm in diameter and I was going onto ½ of that initially. I knew almost immediately that I was in trouble, starting with my lips tingling. I went down hill very quickly from there. Luckily the head nurse was on shift and had personally taken responsibility for watching me carefully because the only option had been take it and see what happens... that option no longer exists.
Thank you, but I think we both have more than enough to cope with as it is.
I also have numerous alarms set. 6am, 8am, 12pm, 2pm, then I get a bit of a break until 6pm, 8pm and finally 9:30pm (it really should be 10pm but I like to be in bed before them) . It's the only way to keep track of them all. Then there are the inhalers to deal with as well as nebulising.
All too familiar. People that don't go through it really don't understand. Rest assured, I do. And, I care.