I live 250 miles from my parents, so I only visit them a few times per year. I am at their house now, for the first time in six months. My dad is 87, but from my perspective, he has aged 5 years in six months. Need to talk to my sister. I think the next year is going to be very difficult, requiring some conversations with my dad that he is not going to want to have.
Anyone else here been through this phase in life?
CD
Yeah, we've had that with my MIL and we're starting to deal with it with my folks.
My FIL declined quickly and died somewhat unexpectedly, though he was 77. We figured out really quickly that he'd been shielding the extent of his wife's dementia. She made it another three months on her own before one of her daughters went down to FL, put her in the car, and permanently moved her halfway across the country to live with them.
That conversation was, "I'm NOT moving!" (packs suitcase), "There's NOTHING you can say to MAKE me move!" (puts coat on and gets in car), "I'm NOT moving and that's all there is to it!" (drives to Missouri), "I have my OWN house and am perfectly fine!" (gets out of car and goes to her new bedroom.
After about 18 months, she had to go into care, and it was the same thing, said she wasn't moving all while unpacking her bag at the facility.
That would be the first piece of advice - don't beat yourself up if a care facility is the best option. My MIL nearly killed herself and others (not attempted suicide/homicide, just accidents) on four occasions before my SIL sucked it up and did what was necessary. Sometimes, professional care is called for. She died three years later, and by that time, it really was a blessing for her.
On my side, my dad (81) is at the stage where he pretty much knows everyone, but he can't remember much from one minute to the next, so it's impossible to carry on any kind of conversation beyond, "How ya doin', Dad?" He's like a tape loop, he just repeats the same jokes and stories and stories and jokes over and over again.
It's hard to explain, but there's just no context to what he says - I can be talking to my mom (who's forgetful but otherwise sharp as a tack), and this'll happen:
"So, Mom, did you say Janet called yesterday?"
"Yes, she sure did and she wa-"
"WELL, YOU KNOW WHAT I THINK? I THINK THE SAME ABOUT THAT AS I DO ABOUT THE FELLER WITH ONE LEG...HE COULD RUN FAST, BUT HE SURE COULDN'T GET ANYWHERE! Yessir...had one leg!..."
He's also got mobility problems, but won't use a scooter or wheelchair. He mainly goes from sitting in his lounger to sitting in his car to lying in his bed.
Scary thing is, he still drives, and Mom supports that, because she loves to go go go, but she doesn't like to drive. He has no idea how to get anywhere anymore, so Mom directs and he drives, and let's just say, he's never met a red light or a stop sign that he hasn't run. Mom tells me every time I call about the nine near-misses on the way to town and the 12 near-misses on the way back, but her attitude is, "What're gonna do? You can't expect us to sit at home all day!"
Mom is starting to lose it caring for my dad. Dad and Mom have a very traditional relationship for their generation - he says jump, she says how high, and he leads and she follows. If he says something blatantly bonkers, like, "I'm cutting that giant oak tree down that's right next to the house, now get me mah chain saw," she's not going to tell him no or try to persuade him out of it. He's the man, he's the boss, and if that's what he wants, then that's what she supports, but it's wearing her out, because he can't talk to their financial planner anymore, he can't deal with telemarketers or the doctors anymore, it's thrust her into more of a leadership position, and it's really doing her nervous system in.
All us kids have taken a hands-off approach, because you can't talk to Dad sensibly anymore, and Mom can't make a decision to save her life. So I'm just waiting for that phone call one day that Dad's driven through a street fair or Mom has had a heart attack from the stress.
Echoing
Backbay, though - patience. You'll learn more about patience than you thought possible. My wife had a major stroke six years ago, but has mostly recovered, but it's affected her enough to drive us both crazy. The key for both of us to make it through the day is patience with her and with each other. Patience with not rushing MrsTasty when she can't find the word she needs (even though I know what she means), patience with myself for when I do lose my temper and speak sharply to her for forgetting to do something she said she'd do, and she has to be forgiving of herself for not being the person she once was.
One other thing - with her parents, my wife had full medical and financial power of attorney. Make sure someone in the family (who can be trusted) has that. Don't wait until they're too far gone, or it's harder to get, because the courts have to get involved. Get it now, and it'll make life so much easier.
Good luck with everything you're going through. You, too,
Backbay