Oof that sucks!
Can’t remember if I mentioned I have to carry a CPAP? I would not like to do that in view of others, you have my sympathies.
Hopefully it will make things a lot easier as it also means they will ditch the 100ml bottle limit. Initially they said they would any road.
However when I spoke to security in Bristol airport they said there would still be limits. Tbh I got the impression she was just making it up and didn’t know what was happening
Personally I can’t wait to get on a plane with a jar of marmite or mustard or wow butter
When I needed to take two large batteries to power my CPAP in a place with no electricity I was so paranoid they would confiscate one, when I read you’re allowed one ”integral to the machine“ and one spare I spent (insert swear word here) loads on a travel machine that the batteries fitted directly and seamlessly into the machine.
It was worth it for peace of mind. The thought of having to choose your flight or your health is rather stressful!
I don't think I was aware of that, so know you'll understand. We don't take flying lightly. It's hard with my meds, worse because I can't change brands of things because dairy gets into so many tablets
and inhalers. I can't afford to not have my inhalers handy and have spares around. They even pulled my epipens out at Manchester and insisted that they were in a plastic bag. They can't change location. We're accustomed to looking for them in 1 place in an emergency and 1 place only, along with the liquid steroids and liquid antihistamines. They don't get that at all. They even removed my spare inhalers from their boxes, so now they don't have the script on the box because the boxes were disposed of for me! I managed to hang on to my morphine box by stating I needed it to get the morphine back into Australia because it's a restricted medication and the label is on the box...
I have refused a CPAP. When they tested me in the lab after I was given one they concluded that it didn't help me. Neither did the mouth guard device that I tried and cost $$$$. So far in fine without. It's not actually sleep apnea that I've got but tracheamalacia, so provided I sleep on my side in fine. My trachea has been falafel through constant coughing over the years.
Yeah, I get those issues. My main nebuliser can do the hypertonic saline (6% or 7%) and is much faster and better all round. But it runs off mains only.
I've got a cheap one that runs off AA batteries or USB, but that can't do the saline, just the steroids, and 2 relievers. And it doesn't last particularly well. When I used it everyday, it would die within 3 months. So now we aim to only use that when really necessary...
But it means I need batteries, 2 × medical equipment, loads of liquid medication that can't be opened until it is used because it is light sensitive and so on. So the security questions tend to go, do you have any.... answer yes. You can't... yes I can. It's for medical equipment and the rules state clearly I have to run them off my own batteries... and so on. Plus it means I end up with 2 carry on bags because I refuse to put any medication in the hold. If it doesn't arrive, I'm screwed. So half the cabin bag carries medication and half my rucksack carries the emergency stuff (epipens, liquid hydrocortisone with needles and syringes, liquid needs for nebuliser and liquid morphine) plus I then get the issues with food and the dairy allergy. Needing to take my own milk and so on, plus all snacks, yoghurt. Most places were really good about that coming, it's just Manchester had this ultra radical approach that's meant stuff has actually been opened and inspected so now it should be in a fridge and should be being used within x many days. I'll end up ditching it when we get home because it will no doubt have gone rancid by then (it's a nut based puree that makes up into a nut milk. You just add it to water and shake. Handy in countries like Japan where we've not been able to get dairy free drinks or desserts other than jelly on the plane. )
Oh yeah, and because of a single episode of multiple PEs after life saving surgery 5 years ago, I also get to inject clexane which got inspected as well. They nearly opened one until I objected on grounds of sterility!
I can't take the blood thinning tablets because they contain dairy!
Luckily my doctor is very clued in and I'd asked for a letter listing all medication and stating epipens for dairy allergy and that I needed to carry my own food and drinks/liquids. That single line has been the most helpful getting out of the UK to date!
